The value of sharing patient and clinical data is growing by the day. Sharing health data has potential benefits, but concerns about patient privacy call for a broad discussion. In this session, Professor Kayte Spector-Bagdady will discuss research and health data sharing and the patient perspective.
Learning objectives:
About the speaker:
Professor Kayte Spector-Bagdady, JD, MBioethics is Interim Co-Director at the Center for Bioethics and Social Sciences in Medicine and an Assistant Professor of Obstetrics and Gynecology at the University of Michigan Medical School. At U-M she is also the Chair of the Research Ethics Committee, the ethicist on the Michigan Medicine Human Data and Biospecimen Release Committee, and a clinical ethicist. She teaches the Responsible Conduct of Research as well as Research Ethics and the Law, and is an Associate Editor of the American Journal of Bioethics.
Professor Spector was an Associate Director for President Obama’s Presidential Commission for the Study of Bioethical Issues. During that time she was a staff lead author on reports spanning the unethical STD experiments in Guatemala in the 1940s, emerging genetic and data technologies, and clinical trial design during the 2013 Ebola outbreak. She is a former Board Member of the American Society for Bioethics & Humanities.
Professor Spector received her JD and MBioethics from the University of Pennsylvania Law School and School of Medicine after graduating from Middlebury College. She completed a research fellowship in bioethics at Michigan Medicine and is a former practicing drug and device attorney.
