Centre for Journalology

RDM workshop series

Session 5 - Electronic Health Information sharing and privacy/security

Sharing electronic health information often comes with privacy and security concerns. In this session, Dr. Khaled El Eman will discuss best practices to manage risks in data sharing to protect the privacy of patients and the identity of providers.

Learning objectives:

  1. Understand the difference between primary and secondary uses of data, and the authorities for data disclosure
  2. Be able to describe basic methods for managing data risk when sharing data
  3. Learn about the main challenges with sharing data for research purposes

About the speaker:

Dr. Khaled El Emam is a Professor at the University of Ottawa, Faculty of Medicine and School of Electrical Engineering and Computer Science, and a Senior Investigator at the Children’s Hospital of Eastern Ontario Research Institute. He is Director of the multi-disciplinary Electronic Health Information Laboratory, conducting research on privacy enhancing technologies to enable the sharing of health data for secondary purposes, including synthetic data generation, data anonymization and secure disease surveillance for public health purposes. He also held the Canada Research Chair in Electronic Health Information at the University of Ottawa from 2005 to 2015.