Ottawa Hospital Research Institute

Resources

We have created a number of documents and tools to help you in the design and conduct of your research. We can also facilitate access to additional resources developed to support patient-oriented research, including templates and examples of study materials.

Toolkits

General Toolkit - Involvement of the Public & Patients in Clinical Trials
Bagley H, Short JH, Harman NL, Hickey HR, Gamble CL, Woolfall K, Young B, and Williamson PR (2016). " A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials - a work in progress." Research Involvement and Engagement 2: 15.

Toolkit for Project Leads – Engaging Patients in the Research Process:
Bagley H, Short JH, Harman NL, Hickey HR, Gamble CL, Woolfall K, Young B, and Williamson PR (2016). Engaging Patients in the Research Process [Developed by Can-Solve CKD Network]

Templates

Patient & Public Engagement Planning Template - [Developed by the Newfoundland and Labrador SPOR Support Unit]

Patient Partner Compensation
Budgeting Template (in Excel) - [Developed by the George and Fay Yee Centre for Healthcare Innovation]
Recommendations on Patient Engagement Compensation – [Developed by the SPOR Networks in Chronic Diseases and the PICHI Network (2018)]

Guides

Guide for Participatory Approaches & Engagement Methods for Patients & the Public:
Methods of Patient & Public Engagement: A Guide [Developed by the George and Fay Yee Centre for Healthcare Innovation]

Guide for Ethical Engagement in Health Research (Definitions for building understanding, ethical considerations) Ethical Guidelines for Engaging with Patients as Partners in Health Research [Developed by the Alberta SPOR Support Unit]

Lessons learned for successful Patient Engagement for Quality Improvement Initiatives - Patient Tip Sheet [Developed by Canadin Foundation for Healthcare Improvement (CFHI)] The Ontario SPOR SUPPORT Unit’s Equity Framework