Core Facilities and Platforms

Office for Patient Engagement in Research Activities (OPERA)

Office for Patient Engagement in Research Activities (OPERA)

Resources

We have created a number of documents and tools to help you in the design and conduct of your research. We can also facilitate access to additional resources developed to support patient-oriented research, including templates and examples of study materials.

Toolkits

General Toolkit - Involvement of the Public & Patients in Clinical Trials
Bagley H, Short JH, Harman NL, Hickey HR, Gamble CL, Woolfall K, Young B, and Williamson PR (2016). "A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials - a work in progress." Research Involvement and Engagement 2: 15.

Guides

Lessons learned for successful Patient Engagement for Quality Improvement Initiatives - Patient Tip Sheet [Developed by Canadin Foundation for Healthcare Improvement (CFHI)] The Ontario SPOR SUPPORT Unit’s Equity Framework

Guide for Ethical Engagement in Health Research (Definitions for building understanding, ethical considerations) Ethical Guidelines for Engaging with Patients as Partners in Health Research [Developed by the Alberta SPOR Support Unit].

Ethical Considerations for Partnering in Patient-Oriented Research(682.06 KB)

Publications

Hamilton CB, Hoens AM, McQuitty S, McKinnon AM, English K, Backman CL, Azimi T, Khodarahmi N and Li LC (2018). "Development and pre-testing of the Patient Engagement In Research Scale (PEIRS) to assess the quality of engagement from a patient perspective." PLoS One 13(11): e0206588.

Hamilton CB, Hoens AM, McKinnon AM, McQuitty S, English K, Hawke LD, and Li LC (2021). "Shortening and validation of the Patient Engagement In Research Scale (PEIRS) for measuring meaningful patient and family caregiver engagement." Health Expectations. Epub ahead of print 2021/03/18. DOI: 10.1111/hex.13227.